Wednesday, January 22, 2020

We've Got This...Cancer, You're Outta Here!



Yesterday was surgery day, the day I'd been waiting for since early December. The temperature was 2.6 degrees at 7:15 as we left the house and the sea smoke on the Back Cove was gorgeous.  The sun was shining through it and slowly burning it off.  If we didn't have an important appointment I would have stopped to take a picture since it is a fairly rare event.  It happens when the air temperature is colder than the water and actually makes it steam.  Pretty cool, huh?  I took it as an omen that the day itself would be pretty special...in a good way...and I was right!

First stop was the Breast Care Center in Scarborough, by now a familiar place to Brendan and myself.  I remarked that the car could probably get there on autopilot after all the trips we had made.  After a short wait, I was brought back to the ultrasound room where Katelyn, a personable young med tech applied the [thankfully] warm gel and used her magic ultrasound wand to locate the two titanium clips that had been implanted at the tumor sites in December.  One of the clips had tried to be sneaky and hide amidst the mass but she wasn't fooled.  Next, Dr. Edwards, the radiologist arrived to implant two radioactive seeds at the sites to mark their location and, through my lympatic system, lead Dr. Teller, my surgeon to the sentinel nodes, the first place the cancer would travel to if it was so inclined.  It was a quick process and we chatted as I watched the probe on the monitor approach the ominous masses that looked like monsters from outer space.  I said, "Die, you bastards" and we all burst out laughing.  Next came the activation, four injections near the sites to trigger the seeds and set them on their journey, leaving their telltale path for the surgeon to follow later.  Then it was a [thankfully] quick mammogram to ensure everything was in place and we were off to the surgical center, a short distance down the road.

From the moment we arrived I felt comfortable and confident.  The facility is bright and cheery and Claire, the receptionist couldn't have been nicer.  She seemed to sense that it was Brendan that was feeling the weight of the day a little heavier so she concentrated on putting him at ease.  After a very short wait, we were led back to my prep room where I changed into one of those ever fashionable hospital gowns. (Sidenote: while functional, they are ugly as sin...couldn't SOMEONE come up with a style a little more flattering?) I knew we were in for a bit of a wait so I took out my knitting...poor Brendan has been waiting for these socks for months.  The wait was actually very short and in came a parade of nurses, techs, doctors, unicorns (ok, no unicorns) to ask questions, check vitals, bring warm blankets, ask more questions, give me pain pills (they called it early intervention...fabulous idea!), and finally, insert an IV in my hand.  No more knitting after that.  Dr. Teller came in, as well as the Anesthesiologist and we knew we were getting close.  The lone male of the team, Ben, a surgical resident came in to introduce himself.  It was a regular party in my little room. All we were missing was the beer and pretzels. The final step: that oh-so-flattering shower cap...I was styling, for sure!

At a little past eleven it was time to go.  Brendan saw me off with a kiss for luck and headed home.  I was rolled into the deep freeze Operating Room where it seemed as if a dozen people were waiting for me.  I mentioned being able to see my breath and they assured me they would warm me up, which they did.  The team went into action: special massaging socks to keep my lower legs warm and blood circulating (where can I get a pair of those!?), a high-tech electric blanket, and the last thing I remember, an oxygen mask and a soothing voice telling me to take a couple of deep breaths.  I didn't even have to count backwards from 100 (I was planning to sing 99 beers on the wall but never got to it!)

Four hours later, I was slowly rising to consciousness in a room similar to where I started. I heard Brendan's voice in the hallway and his face floated into view. He told me that they had removed the two malignant masses and three lymph nodes.  Pathology will examine all of them and Dr. Teller will call me on Friday with results.  A few saltines and some water never tasted so good.  Eventually, the leg massagers and IV needle were removed and I could get dressed (with Brendan's assistance).  We got post-op instructions which, thankfully, were duplicated on paper since my brain still felt like a bowl of jell-o.

Meanwhile, Social Media was a busy beehive with Heart, Prayer and Thumbs Up emojis, and the consistent message "You've Got This"...wouldn't that make a perfect tattoo across my  chest?  OK, maybe not but the spirit of it came through loud and strong.  I clearly felt all of the love and encouragement expressed by so many family and friends.  You lifted my spirits and reinforced my resolve to become cancer-free.  I am so deeply grateful to each and every one of you who have my back in this battle!

Today I feel remarkably strong and ready for the next phase. I've got cancer on the run and I aim to make sure it stays there.  I want it made clear that it messed with the wrong person!!

Next is a post-op visit on February 6 and then the radiation cycle: three weeks of daily treatments to seal the deal and stamp it out for good...like grinding my heel in its face... such satisfaction.

This was an unexpected journey, and not a particularly welcome one, but I aim to make it a short trip and get back to my normal routine in short order.  If cancer has other plans, too bad...I have an amazing army to back me up and it's a powerful force, to be sure! 

Oh, and don't forget gals, GET THOSE MAMMOGRAMS...THEY SAVE LIVES!!!!


    

Saturday, January 11, 2020

This Thing is About to Get REAL!

This Thing is About to Get REAL!



A flurry of emails and phone calls yesterday and the surgery has been scheduled.  Pre-op appointment is next Wednesday, January 15th and the big event is Tuesday the 21st.  I feel a mixture of relief, apprehension and strengthened resolve.  It is the beginning of a tough fight, one I am determined to win but one I realize will not be without pain and discomfort. I can handle pain.  After all I did once push a giant baby out of an impossibly small space. And pain isn't a bad thing if it leads to my goal of becoming cancer-free...something that WILL happen!  

The last few weeks have gifted me with an army of supporters from all over my life. A special group bear hug goes to the women I shared so many experiences with as an Alpha Sigma sorority sister in college.  The passing years have done nothing but strengthen that amazing bond!!  You gals ROCK!   The emojis have been flying fast and furious: hearts, thumbs-up, praying hands, kissing smiley faces, clapping hands, strong arms, ok signs, gifs and so much more:  each one adding to my arsenal of confidence.  Thank you all for everything: the cards, letters, calls, gifts, messages! If I had to sum up the gist of them all in three words they would be: You've Got This!  The power of that sentiment cannot be underestimated.  You all believe in me so what choice do I have but to kick cancer's butt in spades?  I won't let you down, promise with a pinky-swear thrown in!

So what exactly will this process look like?  My pre-op appointment will be with Karen, the Nurse Practitioner who has overseen my case from the beginning, coordinating the biopsy and followup MRI's and Ultrasounds.  She will give me an extensive set of instructions for the surgery: what to wear, food and drink intake, etc.  She will explain the procedure and answer questions. ("Can I wear my cuddly slipper socks into the cold operating room?") I do know that my morning coffee will have to be dairy free (bummer) but that I can continue with clear liquids until four hours before surgery. I wonder if that includes vodka, gin and tequila.  OK, I'm kidding...kind of.

Surgery day they will first implant a radioactive seed in my left breast, a dystopian sounding process to assist in locating the tumors and sentinel lymph node(s).  [I've been binge-watching "The Handmaids Tale" so dystopian themes are running rampant in my imagination.]  Two hours later I will take a short trip to the Outpatient surgery Center and there Dr. Teller will perform a lumpectomy (also called a partial mastectomy) to remove the two cancerous tumors.  She will  inject a blue dye which will follow the radioactive seed to determine the sentinel node(s) which will then be removed and biopsied to determine if the cancer has made a break for it and headed out of the breast.  If all this weren't happening to me, I would think it was pretty cool stuff...actually I still do think it is.  I am so glad the technology is available in this battle!

I will come home the same day, probably a little goofy (more so than usual) with strict instructions to rest up and let Brendan wait on me hand and foot.  The following week I will go back to see Karen, the NP for a post-op visit and then we wait for the radiation which will start one month after surgery.

Radiation will take place every weekday (M-F) for three weeks. It will entail a short visit each time and a blast of radiation directed specifically at the site of the now-banished tumors to ensure all the nasty stuff is gone. Side effects may be fatigue and some reddening of the skin in the area.  Some women experience short term nausea and hair loss.  I confess that, being a child of the 50's, the term radiation always makes me think "glow-in-the-dark" kinds of effects. But Karen assured me that I won't become a walking nightlight. (Phew!) That would really spoil my chances of being able to play hide-and-seek with Liam, my grandson, when he gets older!  It would, however, come in handy walking the dog at night.  No flashlight necessary and a chance to freak out passing drivers!

The final (I hope) step in this process is a daily dose of a hormone inhibitor to decrease estrogen/progesterone production which fuels the type of tumors I have.  I will likely be on that pill for five years.  At that point, if there is no recurrence, I can be declared officially CANCER FREE. (YEE-HA!)

Many of you have asked if there is anything I need.  I am blessed with a husband who takes excellent care of me.  Additionally, Brendan is king of the kitchen, handling all of the shopping, cooking and cleanup.  SO, the short answer is no, I don't need anything.  If you feel compelled to do anything, consider a donation to the Breast Cancer Research Foundation (bcrf.org) or the Susan G. Komen Foundation (Komen.org).  If you would rather donate to something non-cancer related, my happy place is the Maine State Society for Protection of Animals, a horse shelter where I volunteer which houses 35-40 seized and surrendered horses (MSSPA.org)

I have AmazonPrime, Netflix and Hulu so if you have a favorite binge-able series, let me know.  Also, if you have recently read a book that you are dying to share, pass that along too.  I anticipate doing a lot of knitting, reading and watching movies in between naps until my house arrest recovery is over. 

Bless all of you for being in my corner for this fight.  I am beyond grateful for your friendship and continue to be blown away by your love and support.  Oh, and, girls, DON'T FORGET THOSE MAMMOGRAMS!!!!

Wednesday, January 08, 2020

Tick Tock...

Tick Tock...


I am not a patient person.  I wish I were. In my next life I will resolve to become one.  But right now it's not happening and it's not going to.  

My "adventure" through the breast cancer experience began on November 1 with my annual mammogram.  It took a dark turn the following week with the call-back mammogram followed by an ultrasound and the chilling pronouncement that I needed a biopsy of two areas on my left breast.  It would have to wait until after Thanksgiving. OK. I waited and managed to tuck away the negative "what ifs" for a couple of weeks.  No sense worrying about something until it is a reality and I am, by nature, a "jelly side up" kind of person. The toast can land either way and it has a 50% chance of not splattering on the floor.  The biopsy took place on December 3 and I awaited the results which arrived by phone on December 6 in a late afternoon call.  Not what we hoped for...two malignancies...but both Stage 1 and Grade 1.  Bad news/Good news.  Next came the meeting with the surgeon on Friday December 13.  Dr. Teller was upbeat...this is totally curable but will require surgery, followed by radiation and a hormone suppressant.  Good news.  But she wanted an MRI to get better definition of the tumors and investigate any other possible areas.  OK, I'm down with that.  MRI took place the following Thursday, the 19th.  We were really moving along with this at breakneck speed, just what I would have hoped for.  

THEN...here came the holidays, essentially a two week period  where traditionally all workplaces come to a standstill.  Dr. Teller decided that a second ultrasound was necessary to check out some snarky looking areas on the right breast and left armpit that showed on the MRI.  It was scheduled for January 2 so we were back in the trenches...or not.  Monday the 30th I got a call that they needed to give my spot to a woman who needed an immediate biopsy so I was bumped to Monday, January 6th.  I had managed to once again tuck this ordeal away for the holidays, determined to enjoy my grandson's first Christmas but that call rocketed it back onto my psychic radar and re-ignited my anxiety.  I had the ultrasound on the 6th which showed no additional sites (good news) but now I am awaiting the big Kahuna...the call with the surgery date. This is the culmination of the last two months and the waiting is starting to get to me. Every time the phone rings my anticipation soars...and then it turns out to be a telemarketer who I would strangle for a dime if I could.  ARRRGH!

And then we have the insurance morass...  The bills have begun arriving.  We have an excellent health care plan but this experience has taught me to be very vigilant. Last week I received a bill for a denied claim that amounted to over $1000 for some pathology after my biopsy.  Fortunately I questioned it and it turned out to be a mis-coded claim so I was told to "ignore it".  How many people would have just gone ahead and paid that, despite the error?  We need to fix our health insurance system and SOON! The wheels have fallen off that bus and it's dragging its sorry ass down a very expensive and disastrous highway!  

Lest I sound like Wendy Whiner, let me articulate some of the many blessings I do count in the face of this surreal experience:

* My husband, Brendan, who despite his severe aversion to ANYTHING medical has been by my side from the instant we realized what I would be facing.  This is a man who nearly fainted when the orthopedist showed the MRI of my knee three years ago, pointing out the damage a fall had done.  He doesn't handle medical trauma well, yet has been my rock through every illness and injury.  He's a keeper, for sure!

* Friends and family who have gone above and beyond in their support and comfort.  The calls, emails, cards, and gifts have kept my spirits up more than you'll ever know.  So many of you have shared your personal experiences with breast cancer, giving me renewed hope that I can put this whole thing in my rearview mirror, hopefully very soon.  I love you all for being there for me.

* A medical team that not only has the expertise to knock this thing on its butt but also the care and compassion to nurture  my spirit and allay my anxieties along the way.

So, it's time to buck up and take a patience pill. The surgery call will come.  And then the process will take its course, I will follow up the surgery with three weeks of radiation one month later and then, with God's grace, I can declare myself cancer-free!  

And remember, Gals,  schedule those mammograms!  They save lives!!!